It's been 3 months since my last update on Tyler. We have kept him on milk and finished the supplement program. For a while everything seemed good. His ST came back from maternity leave and was encouraged by his progress. Then, about mid-September he started to regress. More random statements. More SI behaviors. More things that I can't explain. I was discouraged, to say the least.
We discussed this with his ST and she said that she has seen at least 2-3 kids in her care get a lot of benefits from going gluten free. She also said that if we change anything to be sure that we DON'T tell her.
Last week I emailed Dianne Craft to see if she had any suggestions. She recommended putting him back on the program along with doing a six week trial gluten free diet. I had already considered this so....here we go. We have a lot of family coming in town for the next 3 weeks, so during that time he'll be taking vitamins and be back to casein free. After that he'll go gluten free.